Prematurity Support Groups
www.nicu101.com
A web support group called nicu101 can help you find news on whats
happening in the world of prematurity. The web site offers support
forums, articles and products. As a parent to a new preemie this is
exactly where you will find people that understand how you feel. You
can build new friendships and it always helps to know that there are
people just like you sharing the same experience that the Nicu can
bring.
www.specialparent.org
A web support group whose main goal is to give parents of special needs children a place to come to for support.
www.Prematurity.org is a great
source of information. It has been one of the leaders in getting
information out to parents in need of answers. Unfortunately, they no
longer have a forum group, but they still have quality information on
their site for infants and older preemies.
The March of Dimes has a complete support website from helping parents understand pregnancy to helping in the fight against prematurity, the MOD has a complete website dedicated to helping parents of premature infants along with a community forum that you can register and talk to other parents experiencing the same things as you.
You can access their home page at www.marchofdimes.com
Support Groups
National Association of Parents of the Visually Impaired (Napvi)
http://www.spedex.com/napvi
NAPVI is an organization of parents whose children are visually impaired. The group provides information, resources and the opportunity to meet with other parents at their conferences. For more information they can be reached at (800) 562-6265.
National Federation of the Blind - Parent of Blind Children (NFB-POBC)
http://www.nfb.org
NFB is an organization composed of blind adults. Their parent division is NFB-POBC. This organization has been extremely active in advocacy for the rights of adults and children who are blind. They can be reached for further information by email nfb@access.digex.net.
Parents of Children with disabilities support group ran by moms who have had premature infants who have multiple disabilities. A very heart warming place to go to let it all out.www.specialparent.org
New telephone support group sponsored by the Jewish Guild for the Blind
A national telephone support group for parents of young children with Retinopathy of Prematurity is beginning in January of 2007. Facilitated by a psychologist, the support group is being sponsored by the Jewish Guild for the Blind, a member of NAPVI. The Guild is a nonsectarian, not-for-profit vision health care agency located in New York. There is no cost to the parents who participate and groups will be conducted weekly by calling in to a toll-free number at a time that is most convenient for the majority of the participants. For more information, or to register for this group, please call 1-800-915-0306.
